@sonya_lala_ Here’s a screen-record of the clip where they discuss it, for those with limited energy who want to see it. (I meant to document time stamp and forgot during the excitement & shock) https://t.co/aY5vtFl1HS
“This is a chapter that has not yet been written in the medical textbooks, and barely any major research papers yet published. Part of the progress here is simply inputting large numbers and stats to the existing anecdotal sense of what’s been happening…” https://t.co/krNLNieNlh
While some of the hurdles long Covid patients and their caregivers face are due to the unusual circumstances of the pandemic, the overarching issues of shame and burnout in caregiving are not new, writes @fi_lowenstein, founder of @itsbodypolitic. https://t.co/OJaWMzyUF9
And here is the preprint: "Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact"
Special thanks to thousands of you who participated in our study on #LongCovid.
a thread 🧵 0/
We did it!!!!!
This is the result of 7 months of work, thousands of hours, so many spoons. It's the first of many #LongCovid papers we expect from the data, 205 symptoms in all. Link is processing and will be out shortly, but in the meantime, if you'd like to support our work 1/ https://t.co/tuJEaUpXHP
Today I have a new story up on @elemental about the family and friends who have stepped up as caregivers to COVID patients this year, and how this pandemic might make us think differently about caregiving in the future. https://t.co/uRcPMqwHWz
A vaccine won’t help any of the patients with COVID19 in my ER right now. It won’t help those that’ll come tomorrow either. Or the day after.
The pandemic is worsening everyday. What’ll get us through the next few months is vigilance. And masks. And distancing. And patience.
For those living with the long term effects of COVID and newly acquired disabilities:
-It’s ok to be disabled.
-it’s ok to need help
-mobility aids like wheelchairs or crutches are not a “step down.”
-it’s ok to take longer to do things
-it’s ok to set new boundaries.